TikToker Brooke Eby, who documented her ALS journey on social media, died Oct. 1 at 37. The ALS Network announced her death, describing her as an “extraordinary advocate, storyteller, community builder and friend.”
Eby built a following of hundreds of thousands across TikTok and Instagram under the handle “Limpbroozkit,” sharing her experience with ALS, also known as Lou Gehrig’s disease, according to Dexerto.
ALS Network confirms Brooke Eby’s death
ALS Network President and CEO Sheri Strahl credited Eby with reshaping public understanding of the disease. “Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another,” Strahl said, according to Dexerto.
Eby received her ALS diagnosis in March 2022, roughly four years after her first symptoms appeared, according to Dexerto. She began posting videos about the disease later that year, often using humor to show the day-to-day realities of living with it.
“Levity is my superpower,” Eby said during a 2023 interview with Today.
What Brooke Eby’s ALS advocacy meant for fans
Eby used her platform to push back on assumptions about who gets ALS. “I have ALS at a relatable age. Personally, I always associated this disease with older men,” she wrote in a 2025 essay for PEOPLE.
“But I could be someone’s daughter, sister, mom, girlfriend, wife. I think people see me and it’s a little more real.”
She also founded ALStogether, a nonprofit connecting people diagnosed with ALS to resources, experts and caregivers, per Dexerto.
Eby continued sharing updates as her condition progressed. In June 2025, she said her breathing capacity had declined significantly and later had a feeding tube installed. By January 2026, she reported bulbar symptoms affecting her speech and swallowing, and in September she told followers that her speech had become difficult for people to understand.
Eby had said she hoped her videos would outlast her as a resource for others facing an ALS diagnosis. “My TikTok presence will live on after I die,” she wrote. “I hope it serves as a visual diary for anyone who gets diagnosed and needs a guide.”
What’s next
The ALS Network’s tribute marks the first public statement confirming Eby’s death. No additional details on memorial plans or services have been announced.
Reporting from Dexerto contributed to this story.
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